„Żeby umarło przede mną. Opowieści matek niepełnosprawnych dzieci” w społecznym reportażu Jacka Hołuba
„Let it Die before Me. Stories of Mothers of Disabled Children” in Jacek Holub’s Social Reportage

Summary/Abstract: The article is an attempt to answer the question of how contemporary reportage participates in the recent re-evaluation of the perception of disability in the context of Polish social reality. The fragments of autobiographical stories of mothers of children with disabilities collected in Jacek Holub’s book are a starting point for considerations on the challenges of reportage as an “indicative genre” and “confusing”, which becomes an indicator of changes taking place in social awareness, assuming 1) broad, also in terms of emotions, understanding of social facts, 2) treating literariness as a necessary medium for presenting reality, apart from documentarian. The text is an attempt to look at the problems of care for people with profound disabilities indicated in Holub’s reportage from the perspective of culturally critical disability studies, where disability is understood as a “form of difference” that obliges society to introduce appropriate adaptations and pathographies in the recently intensified social reflection on health and disease. Holub’s reportage, against the background of the public debate on disability takes on a deeper meaning – not only does it deal with mothers of “disabled children”, influencing the collective awareness related to the perception of their rights and role, but also it is itself a voice of activist involvement.

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