MEDICAL, ETHICAL AND LEGAL ISSUES OF INDIVIDUAL AND GROUP GENETIC TESTING
MEDICAL, ETHICAL AND LEGAL ISSUES OF INDIVIDUAL AND GROUP GENETIC TESTING

Summary/Abstract: Individual and group genetic testing is a set of procedures aimed at discovering real or potential genetic problems of an individual (patient) or his/her family. This paper primarily examines genetic testing for medical purposes, and goes on to investigate the most important ethical and legal issues concerning individual and group genetic testing. This is done both from the standpoint of legal theory and in terms of positive law, primarily the UNESCO Universal Declaration on the Human Genome and Human Rights, Council of Europe Convention on Human Rights and Biomedicine and the regulations of EU member states, USA and Japan. The first question examines is that of the content and significance of genetic information in general; the second one deals with the interests of individuals (probands) being tested, and the interests of his/her family members related to data obtained by genetic testing; the third question concerns genetic testing and labor relations; the fourth question is that of genetic testing and insurance; the fifth question considers state interests related to genetic information and genetic screening.

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