Recognizing child’s lethal defect as a threat as well as progress
in values for parents Cover Image

Rozpoznanie u dziecka wady letalnej jako sytuacja zagrożenia i rozwoju wartości dla jego rodziców
Recognizing child’s lethal defect as a threat as well as progress in values for parents

Author(s): Aneta Jarzębińska
Subject(s): History, Social Sciences, Education, Sociology, Social history
Published by: Zakład Historii Edukacji w Instytucie Pedagogiki Uniwersytetu Wrocławskiego
Keywords: child with a lethal abnormality; family with a terminally ill child; disease as a value

Summary/Abstract: The focus of this particular work is the analysis of the situation in which the parents find themselves after their child has been diagnosed with a lethal abnormality. Specifically parents with a child who has been diagnosed with a rare aberration of chromosomes known as the Edward’s Syndrome. In the beginning of this paper, the parent’s situation will be examined in the context of the child’s sickness as a threat to their respected values. The conducted analysiss hows that with the loss of values, in this case the health of the child, come many negative feelings similar to those, which can be experienced after the loss of someone close. Some of the parents may even feel incompetent because they conceived a child consideredas biologically defective and because of the social environment which perceives them in a pejorative way. What is more, the parents cannot plan the future of their childas every day might be the last one for him or her. It has been noted, however, that the birth of a child with an Edward’s Syndrome canbe, when certain conditions are met, a chance to reconsider the current value system of a parent as well as a chance to think better of him or herself, his or her marriage and his or her family.

  • Issue Year: XIII/2016
  • Issue No: 1
  • Page Range: 411-421
  • Page Count: 12
  • Language: English, Polish