Perception of persons with ataxia Cover Image

Perception of persons with ataxia
Perception of persons with ataxia

Author(s): Luba Jakubowska, Magdalena Kazimierska-Zając, Joanna Rosińczuk
Subject(s): Social Sciences, Psychology, Sociology, Social psychology and group interaction, Cognitive Psychology, Health and medicine and law, Demography and human biology, Human Ecology, Social Norms / Social Control
Published by: Fundacja Pro Scientia Publica
Keywords: Spinocerebellar ataxias (SCA);self-presentation;perception of persons with ataxia;image;neurological speech disorders;

Summary/Abstract: Aim. The aim of the paper is to present the reasons of the forming of erroneous, unfavourable perception of persons with spinocerebellar ataxia. Concept. Spinocerebellar ataxias (SCA) are a group of degenerative disorders leading to damage of the cerebellum and its connections (Klockgether, & Paulson, 2011). The following are distinguished among the neurological speech difficulties present in persons with SCA: dysphagia (difficulties with swallowing leading to problems witheating), speech disorders, and mental disorders. Each of these groups of disorders maylead to the stigmatisation of persons with SCA. Such persons might be seen as sloppyand helpless, and the specifie city of speech impairments and uncoordinated movements as well as their irregular gait may cause these persons to be perceived as inebriated. Such presumptions lead to difficulties in social functioning and may be the cause of discrimination, including the denial of help. Conclusion: What is helpful in combating prejudice is, first and foremost, the dissemination of knowledge about the condition, including launching social campaigns presenting the labelled symptoms of SCA. What is more, work with the patient ought to be focused on the development of coping strategies in the social environment rather than exclusively alleviating physical difficulties.

  • Issue Year: 9/2018
  • Issue No: 1
  • Page Range: 82-88
  • Page Count: 7
  • Language: English